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I believe my daughter has been a victim of Pediatric Negligence. When my daughter (Harper) was born, she was exclusively breast fed. She was born at 6 lbs 8 oz and 19.5 inches long with a head circ of 33 cm. By 2 weeks old, she weighed 7 lbs 14 oz and 20.3 inches long, with head circ of 35.5 cm. We continued with our normal checkups, and everything seemed to be going normal. One thing that Harper had had problems with from the very beginning is her gassiness.
Passing gas and stool was always very painful for her, and always a struggle. When I would bring this is up to my pediatrician, I was told again and again that "it's just gas, nothing we can do." Well, breastfeeding started to get more and more tricky, as Harper didn't seem very happy when she would eat. I would have to move her A LOT to get her to keep eating. I figured this was 'just gas' as we were told so many times before.
The day before her 2 month appt, the meltdowns started. I even called her ped that night (4/10/13) because Harper was screaming uncontrollably all day and night. I was told by the dr on call that they definitely wanted to see her, and that's when I informed her that we had her 2 month appt the next day. She suggested I keep my appt and bring it up then. So when I got to her appt, she weighed 9lbs 10oz 22.5 inches long and 39 cm head circ. She went from 48 percentile to the 6th percentile for weight from 2 weeks to 2 months.
Her Pediatrician wouldn't stop saying "how perfect" she was and how "cute" she was, and that she was just a "small" baby and to not stop breastfeeding, because she is doing great! (I had literally asked if I needed to supplement at this appointment, because I was worried about her getting smaller). I even told her that I couldn't get a lot of breastmilk when I would pump, and she said that that can be normal, and sometimes the pump just doesn't work as well for some people.
I was asked if she was having wet diapers and poopy diapers, and Harper was, so I said yes. I was instructed that if I wanted to continue to breastfeed, that there was NO issue whatsoever, and that it would be best for her. When I brought up the meltdown, her dr literally told me that "some babies are just gassier than other babies"
I knew something was wrong with my baby, and this dr didn't give me the time of day. She never tried looking into ANYTHING. She didn't offer ONE suggestion, or possible cause for my baby's endless suffering screams. She even tried to pawn it off as 'colic' even though it was just starting at over 10 weeks old, and prior to the meltdowns, I had a perfectly happy (but gassy) baby.
I even stopped her in the hallway as I was leaving, because I was so taken aback by the lack of care to ask her "So, if you're just going to tell me it's gas, and my baby is absolutely miserable, when is this supposed to get better??" And I received the generic response of "every baby is different, can't say for sure." I was so hopeless leaving the dr that day, that I went home and started doing my OWN research. (I would like to add in here, that neither Harper or myself have insurance, so I am paying this monster $150 a visit to basically treat me like a paranoid first time mother). What I found was information on possible food intolerances. So I cut out ALL dairy and from my diet.
I went cold turkey on even trace amounts of anything I thought would cause my poor miserable child uncomfort. And it did seem to help! I also started her on a probiotic to help her with her gassiness, just another thing I had to figure out and try on my own without a thought from my pediatrician. Harper still had meltdowns, although they got a little better, and she still had lots of trouble wanting to nurse.
A couple of days after her 2 month appt (4/15/13), I brought her back in because of her nursing strikes (she didn't eat for over 10 hours - I had had enough) and when I told her that Harper refused to eat, and that I thought it was because of her tummy, she looked down Harper's throat, nose, ears, and claimed that everything looked great, but she was SURE Harper was getting a virus. This is why Harper had meltdowns and wouldn't eat. I felt absolutely defeated. By the way, Harper lost 2 ounces from her 2 month appt on 4/11/13 to 4/15/13 and went from the 6th percentile to the 3rd, in just 4 days.
We left the Dr's. once again, with absolutely NO ANSWERS and NO suggestions. Just to give her tylenol for this apparent VIRUS that she thought Harper MIGHT get (but showed NO signs on in any way WHATSOEVER). We were told we didn't need to be seen again until 4 months. SHOCKED, we went home, and I continued to cut dairy and from my diet. I also cut Soy at this time.
Every single feeding we did was an absolute nightmare. Switching from side to side, trying to figure out how she would be comfortable.. I would offer her to eat every single hour because she would never stay latched for more than 30 seconds. I could sometimes get her to eat more when she was sleepy, but overall, for 1.5 months, our house was absolutely hell. It was CONSTANT sobbing myself to sleep, trying to get my baby to EAT FOOD, because she was getting skinny- I could tell!
I didn't know what to do, and I felt like I had no DR to turn to, because I was told time and time again that she was just gassy, to continue breastfeeding, and ride it out. Well, on 5/15/13 which was about 20 or so days before her 4 month appt, I called the dr again. I was worried about Harper. I would weigh her on my scale in the bathroom but I wasn't sure how accurate it was..
I called and my dr wasn't in for the day, so I asked that they have the dr on call give me a call. He called me, and I basically told him that I wasn't sure if he wanted me to wait until her 4 month appt to take her in, or if I should come in sooner. He asked me what was going on, so I informed him that I thought she had intolerances to dairy and soy, and that she was taking probiotics and not eating well AT ALL. I also told him that I thought she may weigh around 9 pounds according to my scale, and that she may have lost weight since my last visit.
He was infinitely more helpful in our 8 minute phone conversation than our original pediatrician had been Harper's entire life. He told her to try her on a different probiotic (which he recommended a brand), and told me to bring her in before her 4 month appt so that they could get a better idea of her weight. I asked if I could see him instead of her regular dr, and he made room for me, and saw me in just 4 days from the time I spoke with him. When I brought her in she weighed 8 LBS 9 OZ. Was only 23 inches in length (only gained .5 inches in almost 2 months) and she LOST half an inch around her head circumference!!!!!! (38.5 cm).
I literally almost threw up in his office. We went over her entire history while I was there, and we determined that we think what happened was that it started off as an intolerance issue, which is why she has had so many issues since birth, and it has turned into a breastmilk supply issue from all of the nursing strikes and refusal. I was basically told that I am starving my baby. I was so angry, hurt, betrayed, that when he left the office to go and get me some samples of hypo-allergenic formula to try, I started sobbing. My heart literally broke in that drs room. I never wanted it to get this far - to where my daughter was basically EATING herself. She was being sustained on just her own fat tissue and organs. How is this OKAY?
If my Dr had even TRIED to get to the bottom of my daughter's problems, if she had even TRIED to look into it, or help my poor baby BEFORE my supply tanked, we wouldn't have been in this boat. My daughter and I are VICIOUS victims of pediatric negligence. I have evidence that the physician provided medical care for the patient before the time of first malpractice incident. I have evidence that an incorrect diagnosis was made. (My daughter NEVER caught a virus.) I have evidence of an inadequate or incorrect treatment plan of the medical situation. I have proof that the patient received a lack of attention and/or did not receive proper monitoring of their situation. I also have proof that patient complications that may have developed were not taken care of properly and/or within a necessary time to hinder further problems.
My baby girl could have died from this. I don't know what kind of impact this is going to have on her growth and developement. I have no idea if any of her poor DEVELOPING organs have been compromised in order to KEEP HER ALIVE.
We have definitely experienced :
Pain and suffering
A loss of income
Medical bills/prescription costs
Loss of enjoyment of life