RubberScrubber
Member
OK, I'm in TN if that matters. I'm getting "treatment" in Vanderbilt for an as of yet unknown CNS chronic pain condition along with Constant Painful migraines, along with other irregularities. This has been a near 10 year process with little to no help and my condition continues to worsen. The past 2 years the pain is so bad I have close to 15-20 non epileptic seizures per month caused by pain.
Now, I am very displeased with my neurologist, any help received from her came from me reading studies, pointing them out to her and her saying ok. Mind you she's one of the "best" in her field, and very high up at vanderbilt. I am seeing her tomorrow and am very anxious as I don't want her to just drop me as a patient because I insult her. I want to ask to see someone who actually specializes in migraines and a different neuro thats in the same sub specialty as her and she's said no before. Also, for some reason it's like she doesn't even try to look into my case. ALL the tests that came back helpful were MY IDEAS, all the drugs that provided any relief were MY IDEAS. I haven't heard an original idea from her other than eat better and get out more when I am a shower is a very painful experience. I also fit the diagnosis for Chronic Pain Syndrome, but she refuses to even give me preliminary diagnoses and because of this I have great difficulty on my disability claim. And worst of all I can get no pain medicine anywhere including Emergency Rooms with a BP of like 260/190 and HR over 200 because she wrote on my chart no pain meds. Apparently it's not en vougue to treat neurological pain with narcotics because of addiction risk or whatever, but I've been prescribed 3 medications that made me suicidal 3 seperate times and other drugs with lesser side effects, still with no help.
The thing is she is a musculoskelatel neurologist, she doesn't specialize in migraines, but when I ask to see a migraine specialist she says no. And because of how vanderbilt works it's not like I can just get a referral, it has to be her referral. I'm afraid that she'll just say ok bye and stop prescribing the meds that I need and I'll have to wait another year to even have a chance to get back into vanderbilt. And also due to the lack of a DX she won't provide I can't get into mayo or hopkins. Hell, the lack of a DX prevents me from getting into pain management...
One time when I was at vanderbilt, in the ER there were some labs that had to be drawn, which isn't an easy thing for me because I've been to the ER so many times and been IV dosed so many steroids that I have no veins suitable for IV access save for my jugular. So we ask her to order the labs. At this time she's in the building, knows when we will be discharged etc, We hear her on the phone with the nurse. and she just doesn't order the labs that we need. Than when we ask why she didn't order the labs she said she was buy. Her and I were in that hospital for over 6 hours together... Also, she didn't even call the nurse to check up on me or come see me or anything.
It's very taxing on my body to drive 5 hours to see her to get this treatment. What are my legal options, or more importantly, what can she do to me? She's the head of her department and hasn't helped me with any of my problems for over 2 years now. It's like she's possessive over me like a trophy so when they figure out what I have she can say I have one of those. We asked her to transfer to a different neurologist with her same specialties, she says no, we ask for a different referral, she says no, you don't need that. Just for a sense of scope, It's looking like I have at least two rare diseases, both of which occur in less than 1 in 120,000 people. I just want to find a better doctor, but I'm afraid she'll kick me out of vanderbilt, stop writing my scripts or just write mean things in my file if I disobey. Hell because of her I can't even get disability... I'm just afraid and could really use advice on what to do next.
Now, I am very displeased with my neurologist, any help received from her came from me reading studies, pointing them out to her and her saying ok. Mind you she's one of the "best" in her field, and very high up at vanderbilt. I am seeing her tomorrow and am very anxious as I don't want her to just drop me as a patient because I insult her. I want to ask to see someone who actually specializes in migraines and a different neuro thats in the same sub specialty as her and she's said no before. Also, for some reason it's like she doesn't even try to look into my case. ALL the tests that came back helpful were MY IDEAS, all the drugs that provided any relief were MY IDEAS. I haven't heard an original idea from her other than eat better and get out more when I am a shower is a very painful experience. I also fit the diagnosis for Chronic Pain Syndrome, but she refuses to even give me preliminary diagnoses and because of this I have great difficulty on my disability claim. And worst of all I can get no pain medicine anywhere including Emergency Rooms with a BP of like 260/190 and HR over 200 because she wrote on my chart no pain meds. Apparently it's not en vougue to treat neurological pain with narcotics because of addiction risk or whatever, but I've been prescribed 3 medications that made me suicidal 3 seperate times and other drugs with lesser side effects, still with no help.
The thing is she is a musculoskelatel neurologist, she doesn't specialize in migraines, but when I ask to see a migraine specialist she says no. And because of how vanderbilt works it's not like I can just get a referral, it has to be her referral. I'm afraid that she'll just say ok bye and stop prescribing the meds that I need and I'll have to wait another year to even have a chance to get back into vanderbilt. And also due to the lack of a DX she won't provide I can't get into mayo or hopkins. Hell, the lack of a DX prevents me from getting into pain management...
One time when I was at vanderbilt, in the ER there were some labs that had to be drawn, which isn't an easy thing for me because I've been to the ER so many times and been IV dosed so many steroids that I have no veins suitable for IV access save for my jugular. So we ask her to order the labs. At this time she's in the building, knows when we will be discharged etc, We hear her on the phone with the nurse. and she just doesn't order the labs that we need. Than when we ask why she didn't order the labs she said she was buy. Her and I were in that hospital for over 6 hours together... Also, she didn't even call the nurse to check up on me or come see me or anything.
It's very taxing on my body to drive 5 hours to see her to get this treatment. What are my legal options, or more importantly, what can she do to me? She's the head of her department and hasn't helped me with any of my problems for over 2 years now. It's like she's possessive over me like a trophy so when they figure out what I have she can say I have one of those. We asked her to transfer to a different neurologist with her same specialties, she says no, we ask for a different referral, she says no, you don't need that. Just for a sense of scope, It's looking like I have at least two rare diseases, both of which occur in less than 1 in 120,000 people. I just want to find a better doctor, but I'm afraid she'll kick me out of vanderbilt, stop writing my scripts or just write mean things in my file if I disobey. Hell because of her I can't even get disability... I'm just afraid and could really use advice on what to do next.