What is the name of your state? Pennsylvania or New Jersey
On the 15th of June my father was admitted to the ER in Cooper, in NJ for dark color in his urine with blood clots. In the ER, told them that he was allergic to a drug called Keflex and Rocephin, among others. After he was admitted, the first IV antibiotic given was Rocephin. This caused a allergic reaction of high temperature, swelling of hands and arms, skin got red, wasn't able to swallow or protect his airways, so they put feeding tube and ventilated him when he had the reaction a couple days after being admitted. He also started to be unresponsive (not opening eyes, not squeezing hand or wiggling toes). The hospital wanted to do a test to rule out meningitis. Also no matter what tests were taken, they came back negative. He also was coughing up some mucus from the lungs. The drs refused to test the mucus being coughed up. It was brownish. We had to force them to actually do the test and came back negative. At that point, No one had answers and took him off the couple antibiotics he was on and even no iv fluids. The care started going downhill and almost to a standstill, and my father was not responsive at all for a few days (Sleeping all day). I demanded he be transferred over to UPENN in Philadelphia.
When he got to UPenn on the 2nd of July. Was sent to ICU. Talked to drs and gave update about Cooper and what meds he was allergic to. The next day he was given a MRI and nothing showed. The next day I was told that he needed the test and ruled out meningitis. After the results came back, drs thought the infection was coming from CDIF and Aspirated Pneumonia. They gave him Vancamison That same day he was given merapanem and a few days later ceftriaxone. which are both similar to Keflex and Recephin. Two of the drugs I told UPENN and Cooper my dad was allergic to. Despite him looking like he was getting better in the ICU, they transferred him to a regular room in the Acute Care Unit. It wasn't even 12 hours after getting there, his fevers were back. They gave him Levoquin and Flagle to try to combat the fever and other symptoms. For a few days after that, nothing seemed to improve, was not really responsive to much of anything. Drs thought he may have been given to much or they weren't working correctly, so all antibiotics were stopped at UPENN, even the IV Fluids for almost a week. There was a half a day while I was there, he was more responsive. I thought he was getting better, but the next day he was back to not being as responsive as before. He was also given a drug called Ativan. That usually helps someone wake up help be more responsive. That did not work at all, he was more non-responsive. After looking the drug up, I found that it was a sedative. Drs took tests and cultures, but came back negative. Now, since he has a enlarged prostate for many years, they want to test for protsatits.
So in a nutshell. I told the ER at Cooper about his allergies to Keflex and Recephin. They gave him that antibiotic. After reaction and tests found nothing, care dropped off after Cooper was being called out on so many things and refusing to give proper treatment. That is why I moved him to UPENN. At UPENN, was same thing but on a bigger scale because they gave him a few different meds that are similar to the drugs my dad was allergic to. Once they were called out on what was going on and not improving, they too stopped antibiotics and Fluid IV. All he was getting was his meds through the tube and liquid nutrition. After I mentioned why he was not one fluid ivs for almost a week they finally gave him fast drip of a Lactated Ringers IV, which is basically a sugar water solution, and that was to lower his temp and keep him hydrated. Now they seem to be ordering tests like the MRI of his prostate thinking possibly cancer. Both places were withholding treatment at times. I would like to think that the doctors are looking out for their patients, but no one has been able to pinpoint what is wrong and taking him off antibiotics and fluids, and care is going in a downward spiral. My thinking is that the doctors are trying to cover up their own mistakes of giving drugs that he was allergic to and trying to find different things, like cancer, to watch their back, so they can say "it wasn't this is was cancer or something else."
I just feel like that once the CDIF is clear or almost clear, he will be forced out to a skilled nursing facility or a hospice situation.
Also the other day, I got a call from the lung center at UPENN. They saw nodules of my father's lungs and want him to be tested in 6 months. Also stating that if the appointment is not on the discharge paper, you have to tell them about it. So with that information and other factors, my dad's care is not the level as it used to be, even at both hospitals. And even they are refusing treatment by taking him off of antibiotics for such a long time. He is currently running a fever and not to responsive.
I am not exactly sure what to do right now. And how to proceed with this. Any information would be very helpful.
On the 15th of June my father was admitted to the ER in Cooper, in NJ for dark color in his urine with blood clots. In the ER, told them that he was allergic to a drug called Keflex and Rocephin, among others. After he was admitted, the first IV antibiotic given was Rocephin. This caused a allergic reaction of high temperature, swelling of hands and arms, skin got red, wasn't able to swallow or protect his airways, so they put feeding tube and ventilated him when he had the reaction a couple days after being admitted. He also started to be unresponsive (not opening eyes, not squeezing hand or wiggling toes). The hospital wanted to do a test to rule out meningitis. Also no matter what tests were taken, they came back negative. He also was coughing up some mucus from the lungs. The drs refused to test the mucus being coughed up. It was brownish. We had to force them to actually do the test and came back negative. At that point, No one had answers and took him off the couple antibiotics he was on and even no iv fluids. The care started going downhill and almost to a standstill, and my father was not responsive at all for a few days (Sleeping all day). I demanded he be transferred over to UPENN in Philadelphia.
When he got to UPenn on the 2nd of July. Was sent to ICU. Talked to drs and gave update about Cooper and what meds he was allergic to. The next day he was given a MRI and nothing showed. The next day I was told that he needed the test and ruled out meningitis. After the results came back, drs thought the infection was coming from CDIF and Aspirated Pneumonia. They gave him Vancamison That same day he was given merapanem and a few days later ceftriaxone. which are both similar to Keflex and Recephin. Two of the drugs I told UPENN and Cooper my dad was allergic to. Despite him looking like he was getting better in the ICU, they transferred him to a regular room in the Acute Care Unit. It wasn't even 12 hours after getting there, his fevers were back. They gave him Levoquin and Flagle to try to combat the fever and other symptoms. For a few days after that, nothing seemed to improve, was not really responsive to much of anything. Drs thought he may have been given to much or they weren't working correctly, so all antibiotics were stopped at UPENN, even the IV Fluids for almost a week. There was a half a day while I was there, he was more responsive. I thought he was getting better, but the next day he was back to not being as responsive as before. He was also given a drug called Ativan. That usually helps someone wake up help be more responsive. That did not work at all, he was more non-responsive. After looking the drug up, I found that it was a sedative. Drs took tests and cultures, but came back negative. Now, since he has a enlarged prostate for many years, they want to test for protsatits.
So in a nutshell. I told the ER at Cooper about his allergies to Keflex and Recephin. They gave him that antibiotic. After reaction and tests found nothing, care dropped off after Cooper was being called out on so many things and refusing to give proper treatment. That is why I moved him to UPENN. At UPENN, was same thing but on a bigger scale because they gave him a few different meds that are similar to the drugs my dad was allergic to. Once they were called out on what was going on and not improving, they too stopped antibiotics and Fluid IV. All he was getting was his meds through the tube and liquid nutrition. After I mentioned why he was not one fluid ivs for almost a week they finally gave him fast drip of a Lactated Ringers IV, which is basically a sugar water solution, and that was to lower his temp and keep him hydrated. Now they seem to be ordering tests like the MRI of his prostate thinking possibly cancer. Both places were withholding treatment at times. I would like to think that the doctors are looking out for their patients, but no one has been able to pinpoint what is wrong and taking him off antibiotics and fluids, and care is going in a downward spiral. My thinking is that the doctors are trying to cover up their own mistakes of giving drugs that he was allergic to and trying to find different things, like cancer, to watch their back, so they can say "it wasn't this is was cancer or something else."
I just feel like that once the CDIF is clear or almost clear, he will be forced out to a skilled nursing facility or a hospice situation.
Also the other day, I got a call from the lung center at UPENN. They saw nodules of my father's lungs and want him to be tested in 6 months. Also stating that if the appointment is not on the discharge paper, you have to tell them about it. So with that information and other factors, my dad's care is not the level as it used to be, even at both hospitals. And even they are refusing treatment by taking him off of antibiotics for such a long time. He is currently running a fever and not to responsive.
I am not exactly sure what to do right now. And how to proceed with this. Any information would be very helpful.