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How can a student have some control of himself?

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Happy Trails

Senior Member
Ohreallynow, in the first link you provided the OP had looked into Asperger's, but never had the son tested for it. So it appears that she thought it could be that too. She also thanked everyone for their responses.

In the 2nd link, Asperger's was brought up from "John123456", because the OP had provided that information, but had deleted it. That post was only a homework assignment. Rmet did make a comment, and why shouldn't she? She does know a great deal about it.
 


rmet4nzkx

Senior Member
FloridaPatty said:
Excuse me No obsession here, I happen to be a Neuropsychiologist and expert witness, fully qualified to evaluate the whole range of neuropsychological disabilities and learning disabilities. Are you a special ed educator or a parent of a child with Asperger's or Autism Spectrum disorder in denial and therefore wish to redirect OP in their focus in getting appropriate evaluation before they become an adult and it is more difficult?
(snip)

Excuse me "Neurospychiologist" (Neuropsychologist) and "expert witness" (read: paid to testify)

I am stunned by your response. You have essentially diagnosed this woman's grandson without having met him! Oh, that's right, you get paid to be the expert so you assume you are always right. Courtrooms, hmmmm, no competition there.


Grandma this is a helpful site with many links:
http://www.irsc.org:8080/irsc/irscmain.nsf/sub?readform&cat=Learning+Disabilities&subcat=Central+Auditory+Processing+Disorder+&type=Web+Pages
LOL! Nice play on words, but if you were able to process the entire post you would have seen that the grandchild had more than CAPD and that I did not give a Dx per se, OP had only reported portions of the report, there can be much frustraiton and confusion in interpretating the reports and the changing Dx as the child matures. That is why I gave the reccommodaitons on how to access resources through the PA state department of developmental services which covers all aspects of these disorders.
 

majano

Junior Member
Clarifying and thanking you all

Thanks for all the replies, it's pretty soboring, as well as informative. I'm going to check the ref. sites tonight. To answer a few of the questions. I don't play into him, as he would never hear that there was something amiss. He KNOWS he can't tell time.....but it has to remain with me alone**************.and we don't talk about it. If he asks for the time, or is in a bind....I pick up the cue and help him. He stopped wearing a watch a long time ago so he didn't have to give anyone the time. Out of some hard slaps of reality he is coming to grips with the fact he can't move forward without help. We used the word "difference" until we were backed into a corner and had to use "disability" in the courtroom. Like he didn't feel low enough already. The fact that I didn't want to give him excuses and that I was not qualified to give a name to his struggles, kept him in the dark as the school district only saw his ability and chalked his low performance up to "defiance."
And FP, he had to drop out. He didn't want to....his heart is broken; But the school would not recognize any LD's and he had no way to succeed. They did nothing but punish him for five years....over incomplete homework, mismanagement of long term assignments**************failed it all. He taught himself to read in grade four but has no comprehension and can't hold info long enough to get it to paper. He needs a lot of accommodations but the district refused to even accept one need.
When he got in trouble he asked the judge if he could live with us and she gave him permission. We have education rights..but in reality there were no choices but one public school and Cyber School. The public school said no to even a TINY tape recorder. She said he could not have a single item the rest of the kids didn't have...he'd be a distraction (17.) So he tried Cyber School. Well, take his LD's and imagine his sitting at the computer with all reading and writing. They were great and would have helped him all day, but he felt stupid**************..particularly as he was retaining nothing. In the correct circumstances, he recalls details to a tee. Long term memory/overall intelligence is excellant. He learns on his own time....used his brain very well as a little child and builds on his knowledge constantly. Short term and force feeding......no chance. Output processing; forget it.
His mother; single until 2001 had no reason not to believe the teachers over me...so was also convinced it was behavior. Our family is now estranged and (this is how terribly serious this is) I'll never speak a word to her again in this life.
She, to this day, refuses to allow my grandson the evaluations he needs to get proper diagnosis and help. That was the question in all my rambling. CAN SHE DO THAT? At best he'll go out into the world unable to function and end up************** Or, maybe he won't make it to that point. He's so depressed. He wants to be in school so badly, but is denied any followup. The school, last May, fooled the parents again, after that whole edu. work-up and wrote another behavior IEP. Not a mention from the 26-page report.
So he's here, with no plan for the day, can't even think of a job where he doesn't have to process/respond and follow sequential directions. HE'S DEAD IN THE WATER. WHAT CAN HE/WE DO? You won't believe this...but him mom wants him to fail. She held all his clothes from him the first six months he was here with us. She was finally ordered to give them to him. She told him they'd be outside the door in bags. She was right inside when he got them, and didn't come out to day hi. Also, they were all dirty. He didn't leave home in anger, he asked the judge because she had been reportedly nasty to him. The police also felt he should be away from her. He wants his mom to love him and always has. It's like she doesn't feel. If I was fair; I'd say she is probably suffering the same thing; but she has been so cruel for so long, I can't have compassion for her.
Whoever mentioned why didn't he have outside activities? He was a boy scout and loved it. While at camp they had to hurry and learn a play for the big campfire. They had a little over an hour...he got in trouble for not getting his part down. He asked to go home. It was the time of his life being at camp, but that one thing did him in, turned buddies against him. He played basketball and a teammate told him he shouldn't have gone out if he didn't want to play...that he always made them lose (he got confused which way to turn when he got the ball) He loved basketball. As a little guy he had a harmonica, jews harp, jug, spoons, tin whistle, fife, indian flute, flute, two guitars, trumpet, drums etc. Music was his life! Teachers noted it was his strength and he should have more of it in his schedule. He playing in bed, in the car, marching in the yard, in his civil war camp, tepee etc. Finally he was able to get lessons in school**************.... he was thrown out of instruction FOREVER in front of the whole class. Why? HE DIDN'T PRACTICE. Real reason; he had no idea how to read music. HE NEVER TOUCHED ONE INSTRUMENT EVER AGAIN. So is any of that the schools fault. YES IT IS. He remained unidentified and none of us knew what to do. I studied/study this every night of my life now****************************..found and learned about it all by myself. Too bad no one would hear me**************.....to bad I was always a few steps behind him. We are all worn out and ruined. Had he been identified and received help, he would have had a life one way or the other. The light went out of his eyes a long time ago.
It's like" he's bleeding and being punished for getting it on things. They'd make a goal of making him learn not to bleed on others but not help him learn how to stop the bleeding." Did I clarify at all?
Thanks for letting me talk. I need the feedback.
 

dallas702

Senior Member
Not taking sides here, but to keep from jumping too far ahead with a diagnosis without interviews I'd have to go with Patty. I have seen a lot of kids who learn quickly how to manipulate the system(s) for all they can get or give.

But again, the grandparent has no legal right to do anything with this minor child. If OP truly thinks there has been long term "neglect" by the parents he can go to the courts to try to get guardianship...but I doubt that would solve anything even if it could be proven and done (except create a HUGE rift between everyone involved). Sometimes grandparents, not being involved in the daily routines and challenges of the parents and child, can become attuned to only one side of the issue. While this boy may have a number of clinical problems. he may also be using a few typical adolescent desires/behaviors to manipulate his environment to suit himself.
 

rmet4nzkx

Senior Member
He can't get help if he doesn't get evaluated, petition the court to appoint a GAL to resolve the issues of evaluations.
 

FloridaPatty

Junior Member
Grandma thanks for the additional information.

You know he just needs ONE person, only one, in his corner. He's got that with you! (some children have no one).

When he turns 18, he's an adult. He won't need mom's consent. Consider that he could be serviced by Vocational Rehabiliation* and learn a trade or more, or you may want to keep going now while he is still a minor. Talk to him and explain the options. He may be feeling hopeless. Being constantly told what you are doing is not good enough or you can't is really a defeatist outlook. Perhaps he may begin to feel hopeful if he knows there are other options.
*VR will need the documentation indicating he has a disability.

I'm going to pause and direct you to Dr. Robert Brooks. Dr. Brooks is on faculty at Harved Med. Your grandson has talents that others may not acknowledge but they are "islands of competence". I hope you take the time to read this, it's an excellent article Dr. Brooks wrote.
http://www.drrobertbrooks.com/writings/articles/0506.html

Just to let you know, my son took up drums at 18! I thought the amusement was suppose to be at a younger age, who knew?

Lastly, here is the url for the National Dissemination Center for Children with Disabilities. It's truly like an online library. The term you want to search is "Transition". I'll get you started with the following and you can go from there. Again, best of luck to you.-Patty http://www.nichcy.org/transitn.asp
 

majano

Junior Member
What's a GAL

Please tell me what a GAL is...
Dallas; this has been since first grade. This is a boy who loved to know everything about everything. He is not saying these things...I was with him every day of his life (give or take) and I lived it with him. He didn't fake he couldn't read until grade four. Dr. verified his perception/vision was such it would not have been possible. His lang. skills were so high his disabilities were hidden. There's no way a child has the knowledge/intelligence he had....if there was no interest. I can't spend time arguing the point. I need help and I do know what I've observed about him. He didn't tell me the things I reported and would hate it if he knew I saw some of the methods of compensation he uses. Sometimes he opens up to me a little. I'm the one who understands and he knows I'm here to listen when he's ready to come to grips with it. He had a tutor this past summer**************....and worked well with him. The gentleman noticed the struggle and the language difficulties. The Cyber School staff said it was such a shame he slipped through the cracks and said to him "It's not your fault the school failed you, don't be so hard on yourself." That was from their observations, not his comments. He's depressed because he wants to be in school and has no means of succeeding without voice to print, lang. program and all types of things; books on tape, furnished notes. It's been a year and a half since the reccommendation with the Dr. saying it was urgent. I hope this dispels the idea that he is trying to get out of it.
If he was....he'd have the world by the tail right now. He's 17 and out of school. This is a fantastic kid who has done so many wonderful things in his life. It's worse when you've had wonderful opportunities and now have none. And gifted/learning disabled hurts twice as bad too.
 

majano

Junior Member
Hey FP

Just beginning the reading but; GUESS WHAT? I just went to hear Dr. Goldstein speak in Harrisburg about six weeks ago at the PA LD conf. I joined the LDA and off I went. Shocked the daylights out of my family. Saw it on schwablearning.com/called and registered/booked a room.
I'll never stop learning what I can on this subject because I'm so aware of the kids stuck in detention centers without a clue how they became so "bad." I can't stand to think about it. OK, excitedly I'll go read Dr. Brooks.
 

rmet4nzkx

Senior Member
majano said:
Please tell me what a GAL is...
Dallas; this has been since first grade. This is a boy who loved to know everything about everything. He is not saying these things...I was with him every day of his life (give or take) and I lived it with him. He didn't fake he couldn't read until grade four. Dr. verified his perception/vision was such it would not have been possible. His lang. skills were so high his disabilities were hidden. There's no way a child has the knowledge/intelligence he had....if there was no interest. I can't spend time arguing the point. I need help and I do know what I've observed about him. He didn't tell me the things I reported and would hate it if he knew I saw some of the methods of compensation he uses. Sometimes he opens up to me a little. I'm the one who understands and he knows I'm here to listen when he's ready to come to grips with it. He had a tutor this past summer**************....and worked well with him. The gentleman noticed the struggle and the language difficulties. The Cyber School staff said it was such a shame he slipped through the cracks and said to him "It's not your fault the school failed you, don't be so hard on yourself." That was from their observations, not his comments. He's depressed because he wants to be in school and has no means of succeeding without voice to print, lang. program and all types of things; books on tape, furnished notes. It's been a year and a half since the reccommendation with the Dr. saying it was urgent. I hope this dispels the idea that he is trying to get out of it.
If he was....he'd have the world by the tail right now. He's 17 and out of school. This is a fantastic kid who has done so many wonderful things in his life. It's worse when you've had wonderful opportunities and now have none. And gifted/learning disabled hurts twice as bad too.
GAL is a Guardian ad Litem they represent the child, in this case for his civil rights to receive an education and accommodations under ADA. Non Verbal Learning Disability is another term for this problem. This is a bigger problem than CAPD.
 
U

uraphart

Guest
Ohreallynow? said:
rmet does have an obsession, I am with Patty here. I think if you do a search option on Asperger's she has "diagnosed" almost 500 posters or their children with this syndrome.

Here is another one just TODAY!
https://forum.freeadvice.com/showthread.php?t=300612&highlight=aspergers


I personally think she might have traces of it.

Edit to add ANOTHER ONE!
rmet is definately trippin and it isn't attractive. She seems to have been launched onto another planet recently. Certainly is a "jack off all trades". rmet has made claims of being an expert in too many areas to be credible. She is not to be taken seriously. Her posts are loaded with blunders, inaccuracies, and atrocious misuse of the English language. She is no more than a delusional fool who doesn't realize the TV shows are not real. Sorry to say, but they are fake, rmet.
 
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