What do I do to fairly be treated?

[BlondiePB]

patients with trachs can be taken care of at home - some teaching would be done in the hospital first to his primary care-givers. Pain control and comfort measures can be taken care of in the house also, either by family members or visiting nurses.

That is true. What is not known is the total amount of care the OP's father requires, which may be way too much for him to be taken care of at home. That will be evaluated by Hospice.

 

[rmet4nzkx]

That is true. What is not known is the total amount of care the OP's father requires, which may be way too much for him to be taken care of at home. That will be evaluated by Hospice.

I question whether OP given her tender age and very recent acknowledgement of the gravity of her fathers condition would be able to do this for any extended period of time in the home, unless there are several competent caretakers available, a physician that makes house calls, visiting nurses etc. that was my reference to taking him "home" as in discharged from the hospital into some sort of hospice care. Hospice care available may vary from area to area, hopefully OP will update us with their progress.

 

[BlondiePB]

I question whether OP given her tender age and very recent acknowledgement of the gravity of her fathers condition would be able to do this for any extended period of time in the home, unless there are several competent caretakers available, a physician that makes house calls, visiting nurses etc. that was my reference to taking him "home" as in discharged from the hospital into some sort of hospice care. Hospice care available may vary from area to area, hopefully OP will update us with their progress.

Yep. Having to make such tough decisions, I know about how the OP's father may not be able to be taken care of at home by Hospice, but may be moved to a Hospice facility. In one instance, the Hospice admission RN after evaluating an elder recommended that I place the terminally ill person in a Hospice facility due to all the care required.

Because there was a spouse who also needed her own care, but no where near the care her husband required, I did send him back to the ALF and hired 24 hour CNA care until imminent care was required. The wife went where her husband went. It was the right thing to do in that situation. There were 24 hr. private duty CNAs, visiting Hospice nurses, other Hospice personnel, and a Hospice physician available 24/7 too.

Finding the way to tell this lady, who was incompetent but not as far along with Alz. as her husband, that his days were numbered was going to be tough. All I can say is that the right way to tell this lady came to me by Divine intervention. It was so right, she understood perfectly. She decided that she wanted no one, including all health providers, to tell him. That was a remarkable and very good decision. And, the right one. I totally supported that decision and as "the enforcer" did my job by making her decision so.

 

[laurenlbnj]

I would just like to let you all know that as of October 2nd, my Dad passed away. They say end stages of c.o.p.d, and g.i. renal bleeding?! They turned his machines off, they say his body was shutting down.
I stayed in the room with him as well as my other family (about 20 of us). I held his hand the ENTIRE time with my twin sister, and my youngest neice.
That was the most horrible thing I have ever saw in my life. They had him on 50mg of Morphine, and we just had to sit and watch his heart rate drop. Which caused a whirlwind of emotions for me... just go Dad, rest, and oh my god my Dad is dying, and I am not doing anything?
I will never be the same AGAIN. And I just wanted to say thank you to those of you that tried to make this picture a little clearer for me. My sister said I am in SERIOUS denial, I am begining to realize that, I am now on Lexapro, which I feel is somewhat working already. I just did want to say about the statements of me coming here angry, yes I did, but as to Ellen, I still feel that comment was a little harsh to me, but at the same time thanks for trying to help me... tough love I guess. Lauren

 

[rmet4nzkx]

Lauren,
I'm sorry for your loss, there is little words can say and nothing that woll bring your father back. At least you and your family were were at his side when he passed. I'm glad that Lexapro is helping. Remember what I said about smoking. Thank you for comming back to give us an update.